Guts and Poop and Gray Hair…Oh My!

Every day I pick up the kids from school, I pass a massive carcass decomposing along the side of the road. Maybe a cow or a bear? I’m not sure. But the thing I find fascinating—and oh-so- delightful—is that it has remained on the side of the road long enough to rot. No well-intentioned citizen has called the Division of Wildlife to demand the unsightly skeleton be removed. Everyone here seems content enough to let the poor beast rot in peace.


Within the two short months we’ve lived here, I’ve grown quite accustomed to seeing “guts” and bones. Piles of intestines have frequently appeared on our porch, dirt driveway, and grassy, unkempt fields. By mid-morning, they’re swarming with an assortment of flies and flesh-eating bees (why did I never learn about Vulture Bees in school?? SOOOO interesting!!), and by early evening, all traces of the shiny, coiled intestines have been efficiently consumed.


Speaking of guts and carcasses, I’ve started the strange habit of collecting bones as we walk about our property, and have amassed a small mound on the ledge of my back porch. While this ossuary of sorts might seem grotesque to many, it constantly reminds me of death’s ever- potential nearness. I find myself increasingly grateful for every glorious breath I’m allowed.


~


Back in Windsor, I used to audibly groan whenever so my phone would vibrate up with a “Next-Door Neighbor” alert. Even so, I read them all the same.


There was once a guy ranting over the “dog poop” that covered the golf course, only to be duly chastised by the manager that the green logs were, in fact, goose turds, and not much could be done to control the wild geese. (I’m sure there were quite a few people who might have favored shooting the birds rather than permit their precious golf course to be littered with poop).


Sneakily snapped photographs often popped up on the neighborhood app, intended to shame the lazy dog-walkers who didn’t utilize the free doggie bags provided along the way. The captions always read something like, “PICK UP YOUR PET’S POOP!!! WE’RE WATCHING YOU!!!” in all capital letters, with no less than three exclamation marks.


I get it—no one wants to step in a pile of poop while out on their morning jog, and it’s certainly in poor taste not to clean up after your pet, especially in public places. I just always found people’s extreme rage amusing, along with the looong thread of comments that ensued, and I constantly questioned how people had so much time and energy to expend on a few pieces of poop.


I laughingly wonder how they would have responded to guts?


All this to say, my favorite, favorite, favorite thing about now living in the mountains is the imperfections.

Down in town, very few cars are ever squeaky clean because it rains—a lot—and almost everyone seems to live off of one dirt road or another. Sometimes, a lone dog wanders around the main street because, well, who knows why, and occasionally, they even poop! But I’ve yet to witness someone snap a photo to shame their neighbor. No one shakes their head or clucks their tongue over the poor, impoverished animal whose owner clearly doesn’t deserve their furry friend. Perhaps due to the generous population of deer and elk that roam the valley, people here understand that, once in a while, animals poop.

Suggested reading for my golf-course friends 😂


Additionally, scattered across the face of every mountain, dead trees lie crisscrossed wherever they’ve fallen. Even so, no HOA committee seems to be sending out notifications requiring the owners to clean up their yard. Weeds—even noxious ones—sprout up abundantly amidst the vibrant wildflowers. But to my knowledge, no board is being formed to address this earth-shattering problem, and I feel free to cherish the beauty of even the weeds.


Our new house has woodpecker holes in the cedar siding, and while not idyllic, we’ve accepted it for the time being as our reality. Additionally, our house has no gutters, so the afternoon rains careen down the metal roof without impediment and free fall to the soft, dark earth, resulting in slightly grooved trenches.


“Maybe we will add gutters,” Arin muses, then quietly rescinds, “or maybe we won’t.”


Here, there is an observed synergy between nature and people that is so easy to forget in more populated, “civilized” areas: Animal poop fertilizes the earth. Rodents run rampant, but their flesh provides food for larger animals, and their innards nourish the smaller ones. Trees fall, dirt makes things dirty, and none of these things, although acknowledged and addressed, seem gripe-worthy on “Next-Door Neighbor.”


Ironically, the things that are, perhaps, fit to be posted on social media are calmly accepted with a simplicity that I find both foreign and fascinating.


Our neighbor across the way informed us that a woman was found chopped up approximately a mile-and-a-half up the road a few years ago. He sees bears and mountain lions all the time. These events, he shares matter-of-factly, as it were somehow less of a crisis than golf-course dog poop, and something about his calmness simultaneously amazes me and sits just right in my soul.


When we first moved here, Arin used to grow flustered by the uncontrollable afternoon rains that interfered with his outdoor work plans. Now, he just looks to the darkening sky as his signal to rest, and rather than shaking his fist at the gathering clouds, he comes in for our afternoon cup of coffee, and we head for the porch to watch the storm.


As dramatic or cliché as it may sound, it feels acceptable to just BE for the first time in my life. This place, this air, gives me the courage to be me, to neither despise nor celebrate my imperfections, but to simply permit them to exist. It’s emboldened me to aggressively tackle the issues that I wish to conquer (like my fears) while exposing the “dog poops” I wasted so much energy fretting over (like the gray hairs that keep sprouting from my head faster than the purple musk thistle on our mountain).


As seemingly trite as hair is, it’s consumed many of my thoughts lately. I’ve religiously colored my grays for as long as I can remember. But somehow, up here, it doesn’t seem so unthinkable that a woman under the age of sixty might (gasp) “let her roots show.” I been thinking on a quote I recently read by an older woman concerning her graying hair. “It’s not so much about letting yourself go, as it is about letting yourself be.”


I contemplate the way I’ve promised myself to age gracefully, how I’ve preached it to my girls, admired the trait in my husband—and recognize my potential hypocrisy. Turning my thoughts to our property, I then consider my reticence to use commercial weed killer on land so pristine, and concurrently ponder my willingness to marinate my own scalp in such harsh chemicals month after month.


What if I gave myself the permission to JUST BE?


A smattering of wiry, gray hairs seems to be surfacing some fairly big questions.


In Wayne Muller’s excellent book, A Life of Being, Having, and Doing Enough, he talks about a geological term called Isostasis, which refers to the idea that when something in nature is removed, another is free to grow in its place.


What if I removed my expectations of what I should do, of who I should be? What would be free to grow in its place? What if I learned to just accept instead of always trying to manage and control? What if, instead of fighting against nature, I became a calm, willing, and thankful participant?


These thoughts ramble around in my head, and I feel free to let them percolate—unresolved— and with every passing day, my gray hairs grow longer and more noticeable.


What if I look old? Ugly? What if my husband no longer finds me attractive
?


My thoughts bombard me like an internal HOA board, “Clean up your yard! You must be manicured and pristine, or we will fine you!”
But then I lift my eyes to the surrounding mountains, I open my ears to the chattering locusts and swarming flies, and there is something about the wilderness around me that makes my own chaotic wildness feel slightly more acceptable.

I’ve always been a rule follower and a people pleaser…to a certain point. But there’s also been a latent wildness that I’ve fiercely protected and allowed to remain subdued, partially out of self-preservation, and partly due to my fears and insecurities.


However, there’s something about riding a magnificent horse outdoors, where mountains erupt from the earth on all sides, that makes it slightly harder to suppress everything I feel, to tamp down the woman I’m becoming; besides, I’m running out of reasons not to be fully me. I’m so in love with the life we’re creating that I find I want to be fully present in my own skin instead of escaping my one, wild ride of a life.


Arin and I were talking yesterday about the idea that when you live in nature, surrounded by God’s handiwork versus man’s concrete jungle, something begins working on you from the outside in. Your efforts become multiplied almost magically by something beyond yourself, and for us, something about this whole moving process feels like we are no longer fighting against the goads but being lifted up and carried along a current higher and greater than ourselves.


I fall asleep every night, insanely proud that we’ve fought through so many fears and hurdles to be here and so thankful to be living our best life. Certainly, it’s not been without trial and tribulation, but rather, because of them that we are where we are, and this, I suppose, is a bit like my gray hairs. They are a part of me, whether I acknowledge them or not.


Perhaps it has come time to just let them be.

❓❓❓😵‍💫👵🏼🤷‍♀️❓❓❓

~


To my small handful of readers:

Most likely, this will be my last blog of the summer. The kids are back in school, and it is time to return to a love that has only recently surfaced, a part of myself never knew existed.


As some of you know, I’m working on writing my memoirs, which in the long run, I am hoping to publish. Pray for my endeavors and potential success.


Thank you for journeying with me through these brief summer months and our move to the mountains.


Blessings to you all!

Heaven Stooped Low

“We fail to understand the Divine, not because we aren’t able to extend our concepts far enough, but because we don’t know how to begin close enough.”

Abraham Herschel-

August 15, 2022

I took the kids to eat at a fast food restaurant yesterday after church. The Cracker Barrel had waiting lines out the door, the air conditioning was down at Noodles & Co., and so we ended up–first-world famished–at a run-down Burger King in Pueblo.

The entrance was partially demolished and blocked off with yellow caution tape, almost as if a car had crashed through the front door, and a hand-written sign suggested using the side door as an alternative.

But the alternative entrance looked like a grocery store parking lot lined with shopping buggies filled with sleeping bags and any other tattered possessions their homeless owner had accumulated along the way.

Sufficiently deterred, I pulled out of my parking space around to the drive-through window, which–to my dismay–was only accepting cash. The lobby register was equipped to take credit cards, the staticky voice politely informed.

Grayson growing edgier by the minute, I resigned myself to a dine-in Whopper, and circled back to my original parking spot, where Grayson, Reagan, and I filed out of the car toward the buggy-lined door.

A waif-like man beat us there and was holding the door for us while fixedly staring at the ground. His hair looked like it hadn’t seen a dollop of shampoo for weeks, but when he hesitantly lifted his pale blue eyes to meet mine, I noted they were kind, albeit heavy-laden; and their watery softness stood out in stark contrast to his deeply etched and weathered skin.

Inside, a homeless man was curled up in a chair, loudly snoring away with his filthy shoes propped on the table. My kids exchanged nervous glances but followed me toward the register, regardless, where we arrived just in time to overhear the recently door-holding man barely whisper, “Just a hamburger please,” before plunking down a pile of change–mostly pennies–on the counter. He was visibly nervous as he slid and counted the coins one at a time, and grew further exacerbated when a man toward the back of the line loudly muttered, “Jesus, how long is this going to take?” before irritatedly slapping a dollar bill on the mound of coins.

Now fully flustered, the door-man forgot what number he was on, and had to start counting all over. The young girl behind the cashier smiled apologetically at the approaching manager, who had, in the meantime, wandered over to assess the hold-up and the ever-increasing line.

His head was bare as an eight-ball, and every last square inch of his revealed skin was covered in tattoos. Strands of looping earlobes swung back and forth as he walked, further highlighting the two gaping holes that lacked the structure of their customary gauges. He looked the part of a fast-food manager, I wryly (and critically) mused to myself.

Stepping forward, I offered to add the door-man’s hamburger to my order, but the manager brushed me aside with a wave of his arm. “No worries, I got it,” he said, sweeping the change off the counter into his free hand. I asked the door-man whether I could buy him anything else, and he quietly added from beneath lowered eyes, that, yes, a drink might be nice.

After thanking me, he shuffled meekly to the end of the counter as if he wished to disappear, and I leaned over to asked whether he might like some fries or onion rings too.

Suddenly, the manager’s swift movements caught my attention, and I caught him quickly sneaking an oversized box of fries into the man’s paper bag. Our eyes met, and he winked as he stuffed an extra burger into the bag.

At once, the scales fell from my eyes and the manager’s heavily-inked skin was revealed as the canvassed dwelling tent of God. Joy trickled from the corner of his winking eye, and his face was awash in white light.

There, in line at Burger King, I stood exposed and naked in my threadbare garment of judgment, while the tattooed manager was regally robed in his charitable works, and the door-man vested in a simple, yet splendid robe of humility.

Even so, the nearness of the Divine, was sufficient to cover me–even me.

Truly, there are angels among us.

~

It’s early morning, and the sun has yet to show it’s face over northeastern mountain peaks. A loud thump to my left alerts me to the fact that–yet another–bird has flown into our living room window.

I look over to behold the tiniest, most pitiful of creatures laying in an all-wrong position on a board of composite decking–its wings intermittently twitching and flapping. Assuming it to be a near-death flutter, I pull my chair closer to observe the strange transition between life and death.

I note the bird’s faint yellow underbelly and the white markings around its eye, and assess it–perhaps incorrectly–to be a Warbling Vireo. Much to my husband’s amusement, I’ve taken on the self-appointed role of “Family Ornithologist,” thanks to my new Merlin Bird ID app.

As I’m voyeuristically observing the bird’s sacred transition, Cadence, our German Shepherd, lets herself out the front door, and automatically walks up to the ailing bird and rudely nudges it with her nose.

With what seems like its last dying strength, the bird hurls itself over and its head flops back in an unnatural position. Certain that the light is now surely passing from its eyes, I return to my reading, mentally committing the task of discarding the dead bird to my daughter.

Half-an-hour later, Nala, our dingbat of a Golden-doodle, comes sauntering out the front door to lay her head in my lap, completely failing to observe the little bird I believe to be deceased.

After a round of morning scratches and pets, both dogs notice and re-notice the bird. They sniff, circle, and then to my chagrin, begin poking it with their noses. Surely, they won’t eat a dead bird, I wonder to myself, cringing.

Suddenly, Cadence flips the bird upright with her nose, and I observe that its eyes are now wide-open and glossy black. It’s hops across one, then two and three planks, then leaps off our porch and flies effortlessly to a nearby tree.

I sit, stunned, as I take in the complexity of such a simple moment, and ponder on the quote I’d just read, “We fail to understand the Divine, not because we aren’t able to extend our concepts far enough, but because we don’t know how to begin close enough.”

Self-admittedly, I lack the ability to extend my concept of the Divine “far enough,” for it is here that I find my words and mental capacity simultaneously reaching their end.

Perhaps this is the holy ground where has God has drawn a line in the sand, thus demarcating the end of language’s capacity and the early frontier of contemplative “unknowing.”

Regardless, it is in this micro-moment that I sense the meaning of “close enough.” It is here, that I sense God’s “smallness” and the way He condescends to fill the fragments–the slivers of time–to bring life and light to motionless birds, tattooed skin, and defeated, pale-blue eyes.

~

As I found my way to a table and began doling out burgers, the soft-spoken door-man began unwrapping his at a nearby table. I stood to introduce myself and invited the man named “Adolfo” to eat with us. Re-wrapping his burger, he let me me know that people made him nervous, as he was more accustomed to being alone. I told him I understood as he turned to shuffle out the door, the feel of his leathery hand still fresh in mine.

But it had been “close enough.”

The Divine had come “close enough.”

Ordered Chaos

*Disclaimer and warning: Do not read if you are easily offended. There is nothing admirable in the words that follow. My parenting skills are abhorrently MIA, and my actions are questionable at best. There is no point, no glimmering lesson. It is simply a stark, bare naked sliver of reality, written mainly for me. It is ludicrously and embarrassingly vulnerable. Everything in me questions why I write, and I will waffle back and forth on whether or not to share. Yet, as always, the words of Joan Didion come to mind, “Was it by writing or dreaming that I could know what I think?”

As such, I write to make sense of life’s chaos, to attempt to understand all that remains nonsensical until pen is put to paper or fingers to keyboard, and because I know that if I don’t get this out, it will stay in, and fester and rot. So, I muse and ramble, type and delete until I can start breathing freely again, until something clicks, until clarity emerges from the fog, until my words take on a life of their own and randomly stumble upon something that resembles sanity. I write because I don’t know what else to do or to whom else to talk. And I suppose a small part of me hopes to connect with others who feel the same way. With love…

August 7, 2022, a.m.

Today is the kind of day that makes you happy to be alive. The air is cool and the sun warm, and there’s not a cloud to be seen in the sky. My hair is poking out of a hat in a messy bun, and I’m wearing a broken-in pair of cut-offs and boots. Feeling very ME, I practically float down our dirt hill, excited to get started on my morning work.

I spend the first few hours clearing copious amounts of the previous homeowner’s leftover junk from our stable, along with layers upon layers of hardened mouse and bird droppings. Outside, Grayson and Reagan take turns bush-whacking the waist-high weeds. After I feel satisfied with the inside of the stable, I begin digging up old stumps and dragging them into a pile on the side of our road. Dusty snot pours from my nose, and sweat trickles down my brow. I pause for a moment—wiping them both on my shirt—grateful for my body’s ability to accomplish the strenuous work.

After accumulating a significant pile of wood, I hop into our skid-steer to begin hauling the wood up the hill, where Arin—upon his return from Texas—will eventually chop it up to be burned in the winter.

But Grayson has other plans.

“Why don’t we clean out the sides of Daddy’s shop for his birthday?” he inquires.

I agree, touched by his thoughtfulness, and fire up the skid-steer just like Arin recently taught me and maneuver it (fairly) smoothly up our road to the roll-off dumpster. Up top, I pause to snap a thumbs-up selfie for my parents and sisters. Guess who’s driving the skid-steer? I caption the photo, followed by a wide-eyed yellow emoji.

Guess who’s driving the skid-steer?

“Grayson, take a picture for Gramma and Bop,” I command, and as he hands my phone back to me, I busy myself sending proof of my newly acquired skill.

That’s where I slip up. I forget my own number rule regarding my son: Never let your guard down.

Having secured his work gloves, Grayson begins dragging over long metal poles cemented in five-gallon buckets. He has planned to place them in the scoop of the skid-steer for me to hoist into the dumpster. I watch out of the corner of my eye as he successfully—and carefully—heaves one bucket into the scoop and then two. But by the third, he is growing frustrated and tosses the bucket a little too hard. I watch, horrified, as the metal pole bounces off the back of the scoop and—as if in slow motion—heads straight toward his eye, backed by the weight of five gallons of concrete.

Instantly, Grayson is on the ground as his gushing blood colors the dirt a rusty shade of brown. With no other clean item nearby, I tear off my shirt and press it to his eye as he screams and thrashes in resistance. Oddly enough, he keeps pushing past me to reach for his foot while angrily cursing our dog. Confused, I look around and finally realize that our dog—assuming I was being attacked—had sunk her teeth into Grayson’s flailing foot.

Chaos ensues. A ripped-off shoe is hurled at the dog, followed by a flurry of rocks, set free from Grayson’s trembling fist. I pin him to the ground as he repeatedly tries to lunge for the dog while threatening to kill her. Finally, after a brief moment of struggling, Reagan arrives, bearing ice and clean rags, then secures the dog in the shop. Grayson peels off his sock as a fresh wave of panic overtakes him upon viewing his multiple lacerations.

Long story short, by the time I get him to the house, his wounds are already coagulating, and I suppose it’s safe enough to remain home and avoid yet another trip to the ER.

Allowing myself a deep exhale, I sit back on my heels and breathe a prayer of gratitude. Considering the weight that had just rocketed a metal pole towards Grayson’s eye, it dawns on me that if that pole had struck just half an inch lower, Grayson would have almost certainly lost his eye.

Major crisis averted, I situate him on the couch with a few bags of ice and return outside to finish my work. But the internal reminder was not lost: When you let down, bad things happen.

August 8, 2022, p.m.

A day and a half post-injury, Grayson attends his first cross-country practice at his new school with a lump on his head and a few bandaids on his foot and runs three miles.

Afterward, he bursts through the door, excited to see Rylee, his older sister, who is visiting for a few days before leaving for college. They start wrestling, and she inadvertently flings him backward onto the couch, where, before landing, he smashes the back of his head on the edge of a sharp-cornered windowsill. Once again, he clutches his head and begins screaming, and once again, the dog moves—barking fiercely—to protect me. But Rylee heads her off and locks her up, and instead of gushing blood, I find only a sizable linear knot. Soon enough, the tears and screams subside to a nervous, then raucous laughter as we all celebrate his “good luck.”

August 9, 2022, p.m.

Grayson has successfully completed his second cross-country practice with significantly fewer nerves, and Reagan, her second volleyball practice at the new school. Moods and endorphins are running high, and it seems like a good night for a bottle of wine.

I am in the liquor store only long enough to pay for a bottle of Kitchen Sink Red Blend, but the second I walk out the door, I instinctively understand something is wrong. The front seat is empty, and there’s a jumbled heap of commotion taking place in the back. In a second, I’ve gingerly placed the bottle of wine on my car’s floorboard and hurled myself into the backseat on top of Grayson, who is lying face-up on Reagan’s lap, fingers firmly entangled in her hair. I can smell the humid salt—they’ve been tousling long enough to break a sweat—and there’s blood on Grayson’s shirt, his hand, Reagan’s face.

“What in the hell are you doing?” I demand to know as I squeeze the sides of his fists to loosen his grip and inch them closer to Reagan’s head, hoping to alleviate a portion of her pain. We meet eyes—hers are water- and rage-filled—and we are all a pile of tangled bodies fighting against each other, for each other, and ourselves.

Several curious onlookers wander by wordlessly, and I urgently plead, “Grayson, someone is going to call the police. Think about what you’re doing. You can stop this.”

When the struggle only intensifies, I realize my words are falling upon deaf ears, and I grow increasingly desperate, “What the hell is wrong with you? Why are you doing this? Stop now, or I’m driving back to the school, and you can explain your behavior to your new coach.”

Reagan’s head jerks back, her hair falls limply around her damp face, and I realize Grayson has released her from his grasp. I motion her from the car with a jerk of my head while maintaining a tight grip on him. Slowly, I move him from the vehicle, where he immediately hops in the front seat—his face blank and overly calm.

“It’s over,” he tells me flatly, “We can go home now.”

“No way,” I push back, breathing hard. “There’s no way you’re going to treat your sister like that, then hop back in the front seat like everything is fine. Sit in the trunk of the 4Runner. I want you as far away from Reagan as possible.”

“Nope,” he replies, and I know he means it. “I refuse. I’ll sit here all night.”

(More curious onlookers, more wondering eyes.)

“Then I’m walking back to the school to get your coach,” I tell him, knowing that I’m lying, wondering if he’ll call my bluff.

He wavers for a short minute, then concedes and jumps in the trunk, slamming the door behind him.

That was easy, I think. Too easy. And I know—we’re in for a long ride home.

I lay out the rules: his back must remain flat against the back seat and his arms at his side. If I even think he’s coming over the back seat to hurt Reagan, I will throw the car in park in the middle of the road and fly over my chair to meet him. I will protect my daughter, I let him know, and I hope he understands that I mean it.

He’s quiet—the bad kind of quiet—and I know from experience that he’s plotting. My brain, also, is spinning and whirring, frantically trying to figure out how to stay one step ahead of his. Last week, he locked us out of the house and threw her cat from the second-story balcony (fortunately she landed in a bush), and I know if I take him back home, he’ll do something along the same vein.

Both Reagan and I are on high alert but are attempting to act casual by sneakily watching his every move in the rear-view mirror. He spins and, in one swift movement, grabs a phone charger from the back seat and repositions himself in the trunk facing us.

“I’ll whip you,” he growls menacingly, phone cord raised in the air.

I know I have to avoid a physical altercation while driving, so—grasping for straws—I try to hit him where it will most hurt.

“Grayson, you’re almost an adult now,” I inform him, “and as such, I’ve decided to charge you $200 for hurting your sister. If you choose to continue, the fine will increase.”

He testily flings and retracts the phone charger, and I screech to a halt on the side of the road.

“I’m counting to five, and that cord needs to be placed gently on the seat, or the fine will jump to $500. One, two, three….”

The charger lands with a soft thump on the backseat, and I snatch it up and continue driving.

His shenanigans continue for the duration of the twenty-five-minute car ride. I pull over, threaten, resolve, and resume.

As we near the house, I whisper to Reagan, “Get out of the car quickly when we pull up to our drive and walk home. I’m going to keep driving with him; I can’t bring him home yet. I won’t have reception, so I’ll just be home whenever I can.”

She moves her hand slowly to the door, and I imperceptibly shake my head. “I don’t want him catching on. Lower your hand.”

I loudly ask her to check the mail as we roll into our dirt driveway for appearance’s sake, then peel out as soon as her door latches shut.

“Hey, what are you doing?” Grayson demands. Then, when he realizes I have no intention of stopping, he lets loose with a stream off innovation, “Stop the car, you fuck-bitch-hole!”

Now he’s flying from the trunk and grabbing a handful of my hair, just like he used to do when he was a toddler. Years later, I find myself—yet again—held fast to the headrest, but without any other children to help.

Eyes ablaze, I challenge him, “Rip it out, I dare you. Pull harder, so I can show your dad my bald spot when he gets home!”

Grayson relaxes his grip slightly, and I break-check him. His unbuckled body slams against the back of my seat, and his hand flies from my hair to brace himself.

“Keep your hands off me,” I warn him to no avail. Immediately, his hands wind their way through my hair once more.

I tell him I’m driving all the way to Texas to see his dad. Partially, I’m bluffing. Partially, I’m not. I’ve got no reception and don’t know how long it will be until if find some. I have no earthly idea what I’m going to do, but I know I can’t stop, and I know I can’t go home.

“TURN AROUND!” he bellows, his voice shaking with rage.

I ignore him, then feel from the direction of my hair that he’s reaching toward the ground.

Click, click, click. I recognize the sound of one of our many black gel pens.

“Turn around, or I’ll stab you in the arm until you die,” he warns.

“THEN FUCKING DO IT!” I scream at the top of my lungs, already burning with shame over my lost temper and choice words.

He considers, then resorts to yanking my hair even harder, and so we continue for the better part of fourteen miles—him grabbing my hair, me pulling over and telling him to get out and walk home, him opening the door then shutting it again.

Now, the sky is rapidly darkening, and I weigh out my options—none of them good. At one point in our insane routine, Grayson calls my bluff and gets out of the car and starts marching straight up a mountain, determinedly disappearing into the trees.

Frantic, I resign and yell out the only words that I know will bring him back. “Fine, I’ll drive you home.”

Instantly, he whips around and walks back toward the car, triumphant. My goal is to get him home safely and keep everyone else safe, so I speak to him through a crack in the window and a locked door between us. 
“Here’s the deal,” I tell him, “I’ll take you home IF you go straight to your room and go straight to bed. If there is a single threat, if you run away, ANYTHING at all, I will call your dad immediately and tell him he has to quit his job and drive right home.” (Another bluff).

He agrees, and I pass my daughters on the way home. They’re driving to look for us. I order him to stay put while I pull over at our mailbox and fill them in on the plan. Surprisingly, he complies. “Stay in the car with doors locked until I make sure Grayson’s calm,” I tell them. “Then lock yourself in my room until he falls asleep.”

Instead, they drive to the top of our hill to wait, and just as I hear Grayson’s shower running, I receive a text: The elk are out. Come up!

Beyond the point of caring what Grayson does or doesn’t do, I grab a sweatshirt and walk out the back door. On second thought, I return for the bottle of wine I’d left in my car.

I climb the hill as the sun is setting to find my daughters, their faces radiant with excitement as if it were Christmas Eve. “Hurry, mama,” they whisper, “the elk are getting close!”

We pile into Rylee’s car and roll—silently as possible—to the top of the hill, where close to fifty mama and baby elk are peacefully grazing. Rylee puts the car in park, and we shimmy out open windows to perch on her doors. The moon is shining white and bright behind my oldest daughter, backlighting her head like an angel’s. I open the bottle of wine and uncharacteristically pass it around—even to fourteen-year-old Reagan. Besides the fact that my level of give-a-shit has hit bottom, the moment feels sacred, and the wine seems only right. There’s a small cut on Reagan’s cheek, and her eye is slightly swollen. My hair is disheveled, with multiple strands potentially missing.

Regardless, the struggle has bonded us, and an unspoken intimacy passes between us. In time, Reagan laughs aloud and begins regaling Rylee with tales from the night, “You should have heard how psycho mom sounded when Grayson threatened to come over the seat…”

We sip and giggle as the night sky darkens and the elk silently fade away into the tree line.

Despite the last two hours, I can’t imagine feeling happier, and at that moment, everything in the world seems right.

August 10, 2022 3:30 a.m.

I wake up sweating and anxious, recalling the night before. I’ve been through this enough to know that trying to go back to sleep is futile, so—wrapping myself in a robe—I arise and step out onto my bedroom balcony.

It is the first cloudless night I’ve witnessed since we’ve moved here, and I lean back in my chair, blown away by the sight. Besides the distinctly twinkling stars I’m accustomed to, I behold Jupiter and Mars and clusters and swirls of what I can only imagine being other galaxies. I’m transported to another world, and I sit in the stark silence, watching as one star shoots across the sky, then another.

After an hour, I decide that Rylee simply must see this, so I rouse her from a deep sleep and summon her to my balcony. We sit together in the same wordless silence, and she pulls out her phone to identify constellations with her app—Taurus, Orion’s Belt, and others she can’t pronounce. By the time the horizon is brightening, we’ve seen over twenty shooting stars.

As one exceptionally brilliantly dying star leaves its last blazing trail, I speak my thoughts aloud, “From here, a shooting star is over so quickly, and it looks so simple. But can you imagine what it would be like to witness it up close? It would be so loud and turbulent—nothing like how it appears from the earth.”

I sit, pondering this thought in light of our own preceding chaos. Up close, it all feels scary, turbulent, loud, and violent. But in the big scheme of life, it’s a mere shooting star, a short dash of light in the night sky. Blink, and it’s gone.

So, too, will be my life—chaos and all. It will flicker and burn out. It will be turbulent, chaotic, and catastrophic. It will also be peaceful, graceful, and brilliant. It will be everything, it will be nothing, but it will be mine.

I sit alone, long after Rylee has gone back to bed, and the words ordered chaos come to mind. Not a star falls from the sky without our Creator’s allowance, and I reckon, this is a God I can trust.

Like every other shooting star, my chaos is ordered, it is allowed, and it is for my benefit.

I spend the wee hours of the morning finding solace under this starry blanket of ordered disorder. I’ve heard what people think of my life from afar—I’m put-together, patient, and kind. But I know what my life looks like up close. It’s ugly, embarrassing, messy, spur-of-the-moment flying by the seat of my pants. It’s ALSO breathtakingly beautiful with wine-filled moonlit nights, bugling elk, and giggling girls.

Life is all of the above. I’m all of the above. And that, I suppose, is rather glorious.

The Sinewy Connection Between Life and Longing, Death and Doubt

July 5, 2022

I am mid-stride in the kitchen when the darkness hits. Without warning, it rolls in as quickly as the afternoon thunderstorms, although my darkness feels much more smothering and muggy. Siphoning my breath and dousing my previous exuberance, the darkness accosts me, demanding an immediate account for my actions: What have you done?

In the sudden eruption of thought, I cannot discern whether it’s originating from within myself or without. You realize you’ve just made the biggest mistake of your life. You’ve uprooted your children, your AUTISTIC SON nonetheless, and you KNOW how he hates change! You’ve forsaken your aging parents, abandoned your friends…and for what? A longing? A far-fetched dream?! You know that in time, you’ll make a mess of all this too—just like everything else you touch. You’re an inverted Midas; everything you lay hands on turns to shit!

My stomach twists in knots as I identify the franticness as Fear, and the spiteful accusations as Self Hatred. I banished the latter years ago; still, it loves to rear its ugly head from time to time to test whether my resolve has weakened. It tries to sneak in the back door, piggy-backed on my deep-rooted fear of failure. Both voices blend as one until Self Hatred grows overly animated and—hopping on its soapbox—starts portraying my longings as potential landmines, my dreams as catastrophes-in-waiting. 

Having exposed itself, I gently but firmly escort Self Hatred back out the door, reminding it that it is no longer welcome in my life. Turning my attention to my quivering Fear, I attempt to compassionately acknowledge it as real rather than feverishly ignoring it as I have for many years past.

The heaviness subsides slightly but leaves me shaky and unsettled, certain to the core that nothing in my world will ever feel right or normal again.

Shortly after, I take a walk to dislodge any residual heaviness. My eyes can recognize the surrounding beauty, but Fear prevents them from perceiving it as such. Rather than an ancient, towering Ponderosa Pine, my wildly scanning eyes inform me that I am beholding a mountain lion’s perch, from where it will inevitably pounce and tear me limb from limb. Every rock is a crouching bear, and every snapping twig confirms my impending doom.

But as the incline rapidly increases, I am forced to focus on just sucking in enough oxygen to maintain my leisurely pace (altitude is no joke!). In time, the deep, rhythmic breathing begins unfurling my knotted guts.

Up ahead, the dogs have zeroed in on something of interest, and although I call to them, they willfully ignore me. As I round the bend, I see a full rack of curving ribs, rising like spires from the weedy earth, and the hairs on my arms stand on end. The ribs are still attached to the backbone, forming more than half of a skeleton, with clumpy bits of fur and meat still clinging to the bone.

Although my boys and husband hunt, I’ve only personally experienced the post-hunt plastic-wrapped meat, the cleaned-up pelt-turned-rug. I’ve never killed anything, never even been close to such unmanaged, wild death. Something about it simultaneously intrigues and repels me (like many sacred things do), and I inherently understand that this push-pull will be my new steady companion while adjusting to life in these mountains.

Truthfully, the longing and curiosity have always been intertwined with my fears and doubts (more on that later), and like a rubber band ball, I have never been able to tug on one strand without the whole mass tagging and bouncing along behind. In reality, it’s all one bundled package anyway—life and death, desire and fear, light and dark. They cycle back and forth, round and round, in and out, and our wide-eyed attentive presence to all the opposing forces is what shapes us into more well-rounded humans—empathetic, sensing, and wholly present.

This unexpected encounter with death somehow makes me feel more acutely alive, and as I walk up the remainder of our winding dirt road, I notice my previous darkness had, at some point, dissipated along with my Fear, leaving behind only a deep-rooted satisfaction.

One day, I will be ribs and backbone and clinging morsels of flesh.

I have one life.

How will I choose to live it?

Integrity is often a willingness to hold the dark side of things instead of reacting against them, denying them, or projecting our anxiety elsewhere. Frankly, it is just another name for faith.

-Eager to Love by Richard Rohr-

“To tread the sharp edge of a sword, to run on smooth-frozen ice, one needs no footsteps to follow. Walk over the cliffs with hands free.”

-Buddha-

Donning the Sacred Faded Polo

Here is Grayson, my sixteen-year-old Autistic son, on his second day of work. No, he’s not the kid sitting on the stool with the blurred face. He’s the one hiding behind the white “Skip the Line” sign. A family friend has entered the movie theater, so Grayson has ducked out of sight until she has gone.

“It was natural,” he later explains, shrugging indifferently, and then I have to explain why it was not.

“How would you feel if you walked into a theater and the person who was supposed to be taking your ticket hid from you?” I ask.

“It would be weird,” he snickers with a raised eyebrow (as if speaking to a moron), and then sloowwly connects the dots. “Ohhhhhh, I see,” he replies, freshly enlightened, “It’s weird to hide from people when you’re working.”

After a long belly-laugh ending in tears, I take a serious moment to reflect on the significance of the day. My son – the one I never expected to live past his fifth birthday due to an apparent affinity for darting into traffic, the one I had to peel off my leg all the way through grade school, the one who still follows me and talks nonstop through locked bathroom doors – that kid applied for a job two weeks before his sixteenth birthday just because “it felt right.” That kid walked into the theater for his interview ALONE because “it would be weird” if I came with him. That kid – the one who hasn’t worn anything but sweat pants with elastic waistbands since, well, basically forever – donned a pair of slacks with a little silver clasp and a button (that he still struggles to fasten), and wore them without complaining, simply because “that’s what you do when you have a job.” And that kid, who has only recently been allowed to stay home alone, walked into his first day of work by himself, without even a backward glance, because, “well, not to be mean, but you might embarrass me.”

Never have I ever so welcomed that well-worn phrase from one of my teenagers.

Several weeks prior, I sat through his four-hour orientation (so I, too, am technically qualified to work at the Metrolux). Grayson had never done anything of the sorts without me, and I wasn’t sure whether he’d bolt through the front doors in a rage, the way he’s done so many schoolyears prior. I squirmed in my seat when the topic of sexual harassment was brought up in the cheesy 1980s training film. Even at sixteen, Grayson has no clue about the birds and bees, and as far as he knows, the word “sex” simply refers to gender. Onscreen, a perverted manager with a thick, caterpillar mustache scooted a young employee out of his way by grabbing hold of her waist and murmuring a sultry “excuse me” in her ear. The scene closed with a deep-voiced narration, “To be safe in the workplace, just keep your hands to yourself.”

Shortly after, we found ourselves in the projection room. Grayson, an avid movie buff, was geeking out over witnessing the inner workings of a theater, and I watched my son (who has ZERO spatial awareness) squeeze through the crowd for a better view. He sidestepped, hands held high above his head as if pressed up against a building on a narrow ledge, and his motions struck me as odd. I had never seen him work so hard to avoid knocking into people. Soon enough, he worked his way back to me in the same awkward manner and loudly whispered in my ear, “Mom, I tried real hard not to do sexual harassment. Did I do good?”

His innocence often overwhelms me, simultaneously revealing everything that is right in this world – and also missing. He possesses a purity long-lost and buried, and I deeply aspire to his level of simplicity.

I watch him get ready on his first day of work. He has planned his whole day around his three-hour shift. Taking no less than four showers, he eats promptly at 2:45 (to avoid getting hungry), then takes yet another shower at 3:15, and remains locked in his room until exactly 3:30. I call to him at 3:29, but he refuses to budge – I had said we would leave at 3:30, he informs me, and 3:30 means 3:30, not 3:29. He speaks in that same voice of disdain, implying my ignorance. Once in the car, he enters the address on his phone and proceeds to rush me the whole way, conceding that maybe I know what I’m doing when we arrive at 3:55 – precisely on time.

I sit in the car long after the double metal doors swallow him up. The lump in my throat makes me feel like I just dropped off my preschooler at work. What if he needs me? What if he gets scared? What if he has to use the restroom and can’t rebutton his pants? Will he remember to cover his mouth if he coughs? Wash his hands? I call my husband to confirm whether it’s safe to leave, then slowly roll out of the parking lot, looking back over my shoulder several times. I fully expect to see Grayson chasing after me, wildly waving his arms, flagging me down because he’s changed his mind as he’s so often prone to do. But those double doors remain shut until 7:01, exactly one minute after his shift ends.

Grayson plods to the car, feet dragging and head hung low, while the apprehension rises in my chest. Has someone been cruel? Does he hate it? Is he going to get in the car and EXPLODE? I brace myself for the worst and he hoists himself into my 4Runner, buckling up without a word. I begin firing questions as fast as I dare, knowing full-well how overwhelmed he is feeling.

Me: So, how was it?

Him: Fine.

Me: Were you nervous?

Him: No. But my legs were shaking for some reason.

Me: Was the person who trained you nice?

Him: Yeah. His name was Joe. He gave me knuckles and told me to try to speak clearly.

Me: (breathing a silent prayer of gratitude for Joe)

Him: I did what you said, mom. I tried real hard to make eye contact with everyone. But I’m pretty tired now so I’m just going to not talk for a while.

Me: (with hot tears swelling in my eyes) Okay, buddy, that’s fine. You did great. I’m so proud.

We arrive home, and he walks straight to his room where he hangs up his uniform. I’ve never seen anyone take so much pride in a faded burgundy polo. He places it centrally in his closet, where it won’t touch another shirt – he doesn’t want it to get dirty. I observe, more fully understanding the meaning of “sacred.”

Several days later, I text his elementary, middle school, and high school teachers, “Grayson recently started his first job. I never thought we would see the day and never would have without your help. His victory is all of ours. Truly, it takes a village…”

There have been many days that I’ve felt like ducking behind a sign to avoid seeing someone I know, so I stand amused and amazed at the audaciously authentic life my son dares to live. There have been weeks I’ve struggled with motivation – lingering in my elastic-waisted sweat pants far too long – and feel inspired by the way Grayson innately knows when it’s time to put on a pair of button-up slacks and get to work. And there have been seasons when it’s been hard to look people in the eye because of the emptiness I feel inside. Yet I am in awe of the way my autistic son forces himself to meet a stranger’s gaze and feel even more humbled by his honestly – how he openly admits when he’s tired and needs a moment to sit in silence.

I can’t quite get past the shock of Grayson’s first job. It holds within it the shimmering promise of normalcy I’d surrendered so long ago. Hope floods in, replacing my fearful “what ifs” with possibilities, and I wonder, “What if he’s able to get married someday? What if he can learn to drive? What if he is capable of living independently?”

I marvel at the invisible timeline that resides within Grayson – the way he just knows when the timing seems right, the way he marches forward without looking back. Furthermore, I marvel at the One who has instilled such an unknowable way of knowing within my son. I feel inspired to trust beyond my small way of thinking, to see farther than my limited line of sight. For, how much more will He, who nurtures the sparrows and lilies of the field, care for my son with His tender-loving mercy?

I will cherish this photo of Grayson forever. Whereas I initially saw a boy humorously cowering behind a sign, I now see a man-in-the-making – one who is courageous enough to try, to step out, lift his gaze, speak clearly, fumble with buttons, and risk being laughed at. I see one far nobler than I: my sixteen-year-old man-child, just striving to be worthy of a faded burgundy polo.

.

Huge Small Victories

IMG_5358This weekend we went away for Grayson’s 13th birthday.  I definitely wasn’t in a celebratory mindset going into the weekend, as we had gone through multiple mind changes and so much deliberating about where to go, who should be included, where we would eat at, what we would eat, what the hotel would be like, etc…etc…etc…

The small farm-to-table restaurant was delicious, but did not have “normal food.” There were multiple breaks where Grayson left the restaurant to calm down, and several episodes of concealed (but silent) tears beneath his tightly drawn hoodie while hiding his head underneath the table. Although he tried bites of everything I asked him to, his dinner basically ended up being the “normal” gluten, dairy, egg-free cake that I made for him and brought from home.

The next morning at breakfast, he walked up to our server to ask for his drink by himself and she patted him on the shoulder as he turned to walk away. It was this small, but monumental event that changed my dutiful weekend into a celebratory one, filled with gratitude, amazement and a quiet but firmly substantial joy. 

Any parent that has a kiddo with sensory issues, knows that a touch from a stranger has the potential to turn into a full blown meltdown. But on October 27, 2018, Grayson’s 13th birthday, he didn’t flinch. He didn’t even seem to notice that a stranger had touched his shoulder. 

I was reminded of being in a similar hotel in Missouri approximately 11 years ago. Grayson was sick and on prednisone and a complete mess. He was red-faced, screaming, and asking for juice in the hotel restaurant. He then proceeded to hurl the full cup of juice all over the floor once he received it. This was the same weekend that he bit his new baby sister’s toes and made her bleed for no apparent reason at all.

I also remembered the first time I tried to take him swimming with his siblings at the community rec center. After his screaming and crying calmed down, he proceeded to sit on my lap and repetitively buckle and unbuckle this life jacket for the duration of our time there. 

But on his 13th birthday, we went to a hotel and a new restaurant, and a monstrous skatepark with huge ramps. He didn’t have a melt down.  He asked for help from strangers when he needed it.  He navigated his way through the skatepark while we sat and watched and he tried new things and worked through his fears with the skills and coping mechanisms that have been taught to him by angel-teachers through the years. 

On the morning of his birthday, he wrote me this note, using the voice-to-text skill that was again given to him by teachers as a gentle accommodation when writing by hand was hard for him…IMG_5346

For any parents struggling through a brutal introduction to life with a special needs kiddo…it can get better. The progress is slow and often imperceptible, but the payoffs are immeasurable. I have learned more from him than he could ever learn from me, and although I have questioned over and over if I am the right mom for him, I know beyond a shadow of a doubt that he is the right child for me.

“Love…bears all things, believes all things, hopes all things, endures all things.                     Love never fails.”                                                                                                                                    I Cor. 13:7

Sail On

imagesIt is said around the time that Christopher Columbus set sail, that the English pirate Drake was raking Spanish holdings up the west side of the Americas.  As Columbus had sailed into the unknown, his fearful crew was allegedly on the brink of mutiny – mutiny, rather than come to the edge of…whatever.  Columbus, in this perilous atmosphere, made a stark entry each day in his logbook: “Sailed on.”

More often than not, were I to keep a logbook, I think that my entries might be quite the same, as are my days.  Wake up…work, kids, clean, errands, food…sleep.  Repeat. “Sailed on.”  When I am honest, there are often times that I find myself questioning, “Is this all there is to life?”  I’m convinced that monotony must be the cause of many mid-life crises.  We get stuck in the rhythm of our days, realize that life could realistically be half over, and feel a desperate need to break free from our own restraints, explore beyond the boundaries of our own boredom.

However, we all too often live our lives looking off into the horizon for the next great thing…marriage, a baby, a promotion, vacation, retirement…we are looking to “arrive” and missing the journey.  The thing is, we don’t know what lies on the horizon.  We don’t know if tomorrow will even arrive, and if it does, we don’t know if it will carry promise or catastrophe. We might quickly find ourselves longing for the boredom and monotony of yesterday.  Obviously, the key is to live with gratitude, finding value and joy in the day-to-day.  But I would also propose, as I struggle to live this reality myself, that we should not only strive to find joyful moments in the tedium, but also learn to lean in, settle in, relax and embrace the restlessness of simply sailing.

Just as it is often impossible for a ship to perceive forward movement on a vast sea without any landmarks, we too are often unable to sense any inner growth or progress in life.  But if we can accept and trust the process, the journey, the Captain, we will at some point be able to look back and see that it was all for our good…the sun, the storms, and the endless stream of days upon days.  So for now, I prepare myself for whatever the day will hold.  I’m sure the range will be vast.  And tonight, I’ll settle in and close out the day with another mental entry, “Sailed on.”

 

 

 

 

A Summer Tornado

downloadThe end of summer feels a bit like wandering through the aftermath of a natural disaster.  I mentally move from room to room, assessing all the damage that has been done after several months at home with five kids, mainly my autistic son.  A broken window in the basement…door jamb plates that have been sneakily unscrewed at some point to avoid “room time…” a broken lamp and glass candlestick in the storage that I’ve known about, but somehow, just can’t conjure up the energy to clean…broken glass tabletops from angry, slamming spoons as well as from the time he was “pretending” to throw a chair and slipped…broken doors and doorknobs (oh Lord, so many broken doors)…a garage door that won’t shut, a front door that won’t open…railings that have been ripped out of place…the list goes on and on…

And then there’s the internal inventory…everything I set out to do this summer, everything I hoped to be and do and just ran out of steam. Everywhere I look seems to be a reminder of my failures and shortcomings.  And it feels a bit overwhelming…a lot overwhelming, actually.  I basically want to pack it all up (or just leave it all behind) and move to Montana (or anywhere).

And tomorrow, he starts middle school.  My stomach hasn’t stopped churning since I realized how close the start of school was (a combination of sheer dread and simultaneous elation)!  I remember leaving him at preschool…I guess it was more like peeling him off of me and sprinting out the door…and this kind of feels like that.  I am always afraid of him feeling afraid, of him feeling lonely, of someone being unkind, of me not being there for him.

But in the daily midst of struggling to just breathe and not suffocate, a bright thought sneaks into my darkness.  My 16 year old son, who was standing on a teetering precipice, spent the summer fishing instead of partying, all day every day.  He came home happy at night and actually talked to us and laughed with us!  My daughter spent 5 weeks in Florida helping family take care of a household with 4 small children.  Last night, I sat up until midnight with my 13 year old son and 3 of his precious, giggling, hilarious friends as they tried to learn how to use chopsticks (and or course broke more glass in the process)!  My youngest daughter is still asleep with a friend in a fort they worked until midnight…and not a single electronic device was involved!!

I woke up this morning reminded (yet again) of the messiness and complexity of life.  I constantly feel like my life is either on the brink of a tragic catastrophe or sheer paradise.  They are both true, I think.  Every breath holds within it the potential for suffering and misfortune, as well as peace and prosperity.  But sometimes it is not so obvious which is which. Most days, I am incapable of discerning what events will lead to my downfall or my salvation. It all blends together in one chaotic, jumbled mess.  Perhaps it is all one in the same.  At times, I can’t see through my tears.  But on any given day, they might be tears of heartache or tears of laughter.  Life seems to be one huge contradiction.  It is concurrently chaotic and monotonous, sorrowful and joyful, dreadful and wonderful.

It’s pretty hard to hide and yet at the same time, hard to admit…I’m a mess, my kids are a mess, my home is a mess.  But I guess it’s the mess that makes us human, that makes us vulnerable and that humbles and refines us.  I can’t say that I always appreciate it, that I don’t at times try to close my eyes and make it all disappear.  But on better days, I can at least accept this beautiful mess called life…

 

 

 

 

The Making of a Man

Sack-LunchI packed a lunch for my oldest son today.  I literally can’t even remember the last lunch I packed for him.  But today was his first day of work…a real job…manual labor.  Packing that lunch and sending him off on his own made me realize that even though on one hand, I’m counting down the number of days until I can send him on his way, I’m still holding onto him tightly with the other.  Even though he daily makes me want to scream, I don’t relish the thought of anyone in the “real world” doing the same.  I’m not a hoverer or a very tender mom.  I even feel a little calloused at time compared to other moms I know.  But today was hard.  It was hard to bite my tongue and not give advice.  It was hard to not worry.  It was hard turning him over to someone else who I know will (thankfully) make his life very physically challenging.  Ultimately it was hard to let him go and recognize that this is how men like his father are made…through hard work and hard knocks, through trial and error, falling down and getting up.  And none of that involves me holding his hand any more.  Just like that, my time with him has shifted and it is time for me to step back and lead from behind instead of in front, to teach through listening and silence instead of repetition of words.  Dropping him off, I felt the urge to reach out and grab his hand for old times’ sake, but refrained as common sense warned against it.  So I just watched him walk away without looking back, swallowed a little lump in my throat and drove away, alone with my thoughts and empty handed.  Who knew what a little sack lunch could do…

The Many Faces of Autism

I have wanted to publish a book for a long time… not a book with words or even illustrations.  Just a book of photographs.  I would call it, “The Many Faces of Autism.”  In this book, I would chronicle what autism in our house looks like on a day to day basis – the good, the bad and the ugly.

Most likely, I will never get around to a book of any sort.  But as it is Autism Awareness month, I’ve felt the need to do something to honor Autism, honor Grayson, and honor our journey that we’ve been on together.  I have put together a mini sampling of photographs (click on photos for descriptions).  Maybe this is something that only a mother can appreciate.  I really don’t know.

What I do know, is that sorting through these pictures has resurfaced so many emotions – sheer joy and pride, and grieving all over again at the hard reminders.  I remember the early fits and craziness, countless doctor appointments, and the constant helplessness that never left my side.  I remember peeking through the preschool window to see him pulling his hair and rocking, all of his frantic fears…plastic bags and umbrellas in the wind, the fear that someone would eat his food, touch his bellybutton, etc…etc…etc…  I remember crying the day that he ate his last Krispy Creme doughnut, knowing that a super restrictive diet was to start the next day, as we tried to heal his bleeding ulcers and bacterial gut infection.  This “diet” would kept me up until 3 a.m. trying to figure out what in the world to feed him and learning 1,000,000 new terms for allergens.  I remember never being more than 5 minutes from his school and the way my heart would race every time my phone rang.  I remember the screaming, sometimes hours on end, and feeling like death would be a welcome relief.

However, in spite of all of the heartache, what I mainly see when I take a bird’s eye view of these photographs is…GROWTH!  In the midst of the day to day fits and agitations and 50 TRILLION QUESTIONS, I can easily forget just how far he has come from the little boy that he once was.  These pictures serve as a sharp probe to remind me to count my blessings.  Sadly, I have gotten lost in my own agitation and impatience.  I have started seeing failures instead of successes, and I have forgotten how to laugh with Grayson and find compassion for him in his struggles.  I have forgotten that he is funny and sweet and smart and creative!  And in all of this forgetting, I have forgotten that although I may be tired, I am not a mean and angry, old and haggard witch (how I feel at the end of so many days).  I have forgotten that it’s ok to laugh and smile.  I have forgotten so, so much.  I have a lot of remembering to do, and quite honestly, this overwhelms me.  What if I cannot remember how to get back from where I came?  Perhaps I have never even been “there” and need to forge a new path??  But then I think of Grayson and all that he has overcome and become, what we have become together.  And I know that I can, and that I will, get where I need to go.

 Maybe this is the beauty of photographs.  They capture moments that trigger memories.  And though not immediately apparent, when viewed from afar, we are able to see that which was missed standing close up.  So, without further ado, I am happy to share, “The Many Faces of Autism…”

(Grouped into the following categories…Obsessions, Firsts, Sad Times,  Progressive Photograph-ability, Sleeping Anywhere, Crazy Moments, Precious Moments and my Favorite Notes from Grayson)